May, 2019 was Cystic Fibrosis Awareness month. Kin Canada has been in a fundraising partnership with Cystic Fibrosis Canada in 1964. May 11, 2019 the group held their 11th annual Steak Dinner and Dance with Karaoke inside the banquet room at the Milton Sports Centre.
Cystic Fibrosis (CF) is a disease affecting children’s digestive system, and lungs. When the partnership began, the average lifespan for a child with CF was four years. “Now they’re all the way up to 59,” Julie Osborne-Wilson explained. Kin Canada chapters across the country hold fundraisers throughout the year for Cystic Fibrosis.
Tickets were $30 each. Th e ticket price bought a full steak dinner, and an evening of karaoke, and dancing. Most of the funds raised went into research. Scientists identified the genes causing CF in 1989, and now they have three main control medications. OsborneWilson feels the fundraisers help a lot with awareness. “It helps with the funding, to help with the research to make the difference in the CF Warriors’ lives.” According to Cystic Fibrosis Canada, one baby per week is diagnosed with the disease through screening.
Don Westlake’s six-year old grandson Matthew has Cystic Fibrosis. The family tries to make it out to as many Kin events as they can to support Kin Canada events. “I believe the more events like this that people come to they realize that CF is an invisible disease. You can actually find out more about the day-to-day life that they can go through,” he said. Th e family also holds an annual golf tournament. “Any time we can help spread the word, or attend an event that’s going to help raise funds,
we’re all for it,” he said.
The club also organized an annual Walk for Cystic Fibrosis that took place May 27, 2019 at Country Heritage Park.
For more information on the disease visit: www.cysticfi brosis.ca.
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